The NEC Society

NEC (necrotizing enterocolitis) is a leading cause of infant death, impacting thousands of babies every year. It is a devastating intestinal disease that primarily affects babies born prematurely or with a medical complication.

The NEC Society is a collaborative organization dedicated to building a world without necrotizing enterocolitis. We are working to better understand, prevent, and treat this devastating neonatal intestinal disease.

The NEC Society intentionally elevates the voices of women, people of color, and individuals with rare or unique experiences to share, as they bring critical insight and exponentially advance the NEC Society’s vision of a world without NEC.

The NEC Society is constantly striving to broaden and diversify our reach to underrepresented communities by identifying patient-families who have been personally impacted by NEC and empowering them to share their story.